Pulmonary Rehab.

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Mick Posted: 06-23-2009 5:30 PM

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Hi. All - Will post update very soon - thank you for all of your concerns - I feel O.K.  Good luck and thank you - Mick the Paramedic

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SusieQ replied on 06-24-2009 8:58 AM

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Hi Mick,

Can I just echo what June has said;  good to hear from you and good to know that you are doing ok.

May it continue.

Sue

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Maureen replied on 06-24-2009 12:27 PM

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Hi Mick

Thanks for letting us know that you are ok and good luck with your Rehab.

I had my assessment on Monday and will be starting my course this Friday,

Maureen

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Chris replied on 06-30-2009 1:27 PM

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Well I saw the Respitory Nurse and the Consultant today and the next step for me is Pulmonary Rehabilitation.My names been put forward now I just have to play the waiting game.

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Geof the Miner replied on 06-30-2009 11:03 PM

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Hi Chris great to hear, don't play the waiting game though keep at them till you get on; yes Chris it is great news. You know my thoughts people should go straight on to Rehab from being diagnosed. Would cut most of the depression out of our lives.

          Chris, if you would let June and Shibley and of course me know when you are doing it then we could meet up and watch you in your shocking pink leotard, Geof the Miner.

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Chris replied on 07-01-2009 12:05 AM

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Will keep you all informed of when its going to happen,as yet all they could tell me was its been moved from the hospital and into the community and my name is going to be passed forward to them.Fingers crossed its will happen soon but I'm not holding my breath......ha theres a joke there somewhere.

Geof for this show I shall be doning Nipple tassles and crotchless panties all welcome but no cameras aloud.

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Geof the Miner replied on 07-01-2009 5:18 PM

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Hi Chris, yes on a serious not I have to agree with June, you need to be on a full NHS one where ther are qualified nurses i.e. respiritory, Chartered Physio's and an overview by a DR. We had all different coloured exercise sheets mine was a beige one where I had to be watched all the time, everones oxygen was checked regular and remember what we couldn't shut Shibley up about you get more out Of Pulmonary Rehab than Exercise It was absolutely true. It is good that you will get some importous to start exercising but like June says, check your hospital for rehab. Look after yourself. won't be about much this evening, big day tomorrow so all the best Geof the Miner

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Chris replied on 07-01-2009 9:00 PM

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Thank June,Geof

Yes I agree with your concerns as I to had heard many things with regards to rehab in the community.As far as I am aware nothing has been set up yet its all still in the pipeline.I am however 100% sure that the Hospital in this area has closed its doors to Pulmonary Rehab due to funding issues.I have been told that the community rehab is run and delivered in the same way as the hospital did and even with the same staff but its just not held under the same roof now.

I will keep you posted as to how this goes.Geof all things kinky to one side I wish you all the best for tomorrow mate,will be thinking about you .

Take care

Chris

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Geof the Miner replied on 07-02-2009 8:41 PM

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Keep up the good work Chris nd thank you for your best wishes for today I passed my assessment with flying colours and all that worrying, what hapeens is, you are given a partner and the both of you have to deliver a program to a group on a topic from the EPP what they kindly select for you. Ours were communications, we have to explain with these samples what they pick for you again and I just couldn't believe what they had put on me but through your help Chris it was easy. In the sample which were about a married couple and because of my condition I wasn't allowing him anything so has you can guess I was the female I am sure they got in contact with you lot, I had to finish the sample by saying to him all I want to do is cuddle you but please understand I can't give you sex because I can't get my breath, in the afternoon they thought that my interaction with the group was brill the assessed everything told me what they marked you on and I had exceeded my self on all sections and I had passed

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SusieQ replied on 07-02-2009 11:22 PM

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Hi - my rehab in 2006 was of the community sort, in that it was held in an external gym, not attached to a hospital in any way.   Did have Doc from lung unit at local hospital in attendance on one of the two days each week and also respiratory nurses;  had oxygen thingies there as well ... that is how I got assessed and prescribed oxygen.  Apart from exercise, there were also talks on inhalers, how our lungs work, need for exercise, diet (that was, in my view, useless, but had to stay to get my cup of tea and biscuit!), etc.

There was no chance of any continuation once the 6 weeks were over;  most of the people had transport provided by the Rehab team, so would not have been able to get there under their own steam and, in my case, it was the other side of the city and there was no way I was going to trundle over there, when I belong to a gym just down the road!

So guess what I am saying is that not all Rehabs are the same, but can have the same outcome, i.e. introduction to exercise and information about its importance, and be as much fun.  In fact saw one of the P Rehab nurses on my last visit to consultant and managed to talk myself into another session ........ not that I need it, but it will be fun.

Sue

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Chris replied on 11-11-2009 2:16 PM

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Hi all,

I know it's been a long wait for my PR.The latest development is it's now all fully functional in the new gym and tomorrow I have my assessment done before commencing with the course.They've told me the assessment will take a while and they will also be getting me up to a jogging pace to see how my sats are under load.My reply was ......Jogging! ......Hahahaha........yeh goodluck with that one

Will keep you all informed as to when I start the course.

Take care all

Chris

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Chris replied on 11-11-2009 7:18 PM

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Hi June and Ann,

Thanks for the input,I'm like a kid waiting for Christmas lol.

June,Ria is with me for the assessment but after that she may only be able to attend a few of the classes with me,due to her work commitments.

Ann,I gotta say all that at the minute sounds bloomin impossible but give me time and I'll be running for the Olympics lol.

Oh forgot to mention the course is running for 8 weeks,2 days a week for an hour each day.

Thats again

Chris

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Chris replied on 11-12-2009 5:38 PM

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Just a little update.

I had my assessment for PR done today but unfortunately it was just filling in forms and answering lots of questions.My treadmill test is Thursday next week from this test they'll be able to see what my SATS are under load.They currently sit at 98 when relaxed.

The physio phoned my GP surgery there and then to get me an appointment to discuss my weightloss.Just don't seem to have an appetite at the mo.

Take care

Chris

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Chris replied on 11-12-2009 6:17 PM

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The physio wants me on some sort of supplement.....I vote for Guinness but apparently you can't get it on prescription.Ah well suppose I'll have to go on the gloopy drinks instead .

My appetite has gone mainly because I take the kids to school come home and rest for an hour or so then I take the pooch for his walk  by which time it's lunch but not hungry cause pooped.Then I pick kids up from school come home have a rest then make their food but still too pooped from the walk to want to eat myself.It's a very bad case of bad timings and obviously the fewer Mars Bars I get to inhale the weaker I become which means spending more time recovering.GP is gonna investigate other avenues but personnally I thinks it's just the routine that's the problem here.

Chris x