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Bronchiectasis and no imune system

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steve-tilbury Posted: 03-30-2010 8:00 AM

I have a 30 yr old daughter who at 18 was rushed into i.t.u

and again when she was 26.   both times she fought and came back to us

but she as gone through hell , she is always in and out of hospital.   she has

Bronchiectasis   but she also doesn't have any imune system and has treatment for that every 2 weeks, she has a 7 yr old daughter who she tresures.  but she cant do anything for her or with her

this is now really getting my daughter down and deppresion is setting in, she is losing

all faith and hope. and is in tears most days, i really want to help her but i just dont know

how to,  please can anybody advice,

 regards a really worried father

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SusieQ replied on 03-30-2010 10:24 AM

Hi Steve,

I am so sorry to hear about your daughter - its sounds a desperate situation.  Assuming that all the medical help and expertise is in place and it sounds as if it is, my only thought is whether your daughter would agree to some counselling or therapy to help her work through her depression and feelings generally. 

There are several ways to access a counsellor/therapist:  through her GP, privately, or, I believe, that the BLF helpline might be able to help.  I have never phoned them myself, but understand that they helped another member when first diagnosed - different situation, same feelings.  May be worth giving them a ring and then taking it from there.

Do hope that something can be sorted to help her.

Sue

p.s.  if you need further help in finding a counsellor or therapist, let me know and can give you some information.

 

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margaret1 replied on 03-30-2010 10:58 AM

hya steve......ooh a 7 year old grand daughter....i have a 7 year old grand son..........isn't it a wonderful age???

your family are very lucky to have such a caring father/grandfather.........i can understand your concerns.

i am in a position like your daughter....but not the same condition..but chest related........i think that most people who are affected seriously ...to an extent that they have to totally change their lifestyle must suffer from depression at one time or another...........who wouldn't?........but depression still is stigmatised........'pull yourself together'....'see a doctor' ...'get some pills'..........'things could be worse'...........this is the kind of advice that is dished out as tho there is a magic wand...........

i have been looking for that 'magic wand' for the past 5 years..........don't get me wrong...........i havn't been depressed for 5 years..........i have been depressed during those 5 years.......but if i thought about my 'black days'.............they would total less than 5%..........so being a person who tries to see her glass half full...rather than half empty..........i have been really happy 95% of the time...........

when i have a 'black day/week'.......i don't want to speak  or see anyone.........i wouldn't answer the door or phone.....and just want to go away and feel sorry for myself.............but i realised that this was awful for my family and friends....they used to worry themselves sick........i have now got it all in hand.(i hope)........i text a general message to all........they know i am alright....but 'want to be alone'.......this works for me.......

but i havn't got a 7 year old daughter........i know what she must be feeling tho.......you want to give your children everything..................but my grandchildren 'queue up' to stay with me..........i cannot run around.........but i can sit and play games..draw...sew and knit..........and talk and laugh.........and listen to them..........in fact i can give them the most important thing in the world time..............

i hope this has helped in some way............if she comes on the forum there are lots of understanding people who occasionally post............and you can sometimes say things this way than saying them out loud........

i just have!!!!!!!!

you are doing a brilliant job steve..

cheers margaret Wink

 

 

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